Resources
and FAQ
Feel free to explore these resources for support, information, and community!
Dementia Care Central
This site provides emotional support, practical advice, and valuable resources tailored to caregivers of individuals with dementia.
Dementia Action Alliance
An alliance dedicated to improving the lives of people living with dementia through advocacy, awareness, and resource-sharing
Caregiver Action Network
A resource for family caregivers that offers support, education, and tools to help manage the demands of caregiving.
CaringKind
Based in New York City, CaringKind provides support for caregivers of individuals with dementia, offering training sessions, workshops, and a helpline.
Alzheimer's Research UK
The leading dementia research charity in the UK focuses on accelerating progress towards finding a cure, while providing information and guidance for those affected by dementia
FAQs
These are some of the most common questions that we get asked when a family member is experiencing cognitive decline, or a full dementia diagnosis.
These questions and answers can guide families in understanding the diagnosis and navigating the complexities of dementia care. Seeking professional advice and connecting with supportive resources remains essential throughout the process.
What type of dementia has been diagnosed?
There are several types of dementia, including Alzheimer’s disease, vascular dementia, Lewy body dementia, and frontotemporal dementia. The specific diagnosis will be based on clinical assessments and tests
What are the symptoms we should expect as the condition progresses?
Symptoms can include memory loss, difficulty with communication, confusion, changes in mood or behavior, and challenges with daily activities. Progression varies widely among individuals.
How quickly does dementia typically progress?
The rate of progression varies by type of dementia and individual factors. Some may progress over several years, while others may decline more rapidly.
What treatment options are available?
While there is no cure, medications can help manage symptoms. Non-pharmacological interventions, such as cognitive therapy or lifestyle modifications, may also be beneficial.
Are there lifestyle changes that can slow progression?
Engaging in regular physical exercise, maintaining a healthy diet, staying socially active, and participating in cognitive stimulation activities can support overall brain health.
Should we consider home modifications to ensure safety?
Yes, making the home safer by removing tripping hazards, installing grab bars, and improving lighting can help prevent accidents.
What support groups or community resources are available?
Organizations like the Alzheimer’s Association offer support groups for caregivers and educational resources. Check local community centers and hospitals for additional options.
How can we maintain quality of life for our loved one?
Engage in meaningful activities, maintain social connections, and personalize their environment to reflect their interests and past experiences.
What are the signs of advanced dementia?
Advanced dementia may include severe memory loss, inability to communicate, loss of ability to perform daily activities, and increased confusion or disorientation.
Is it necessary for our loved one to see specialists, like neurologists?
Yes, specialists can provide a comprehensive assessment, help with diagnosis, and offer treatment options tailored to your loved one's needs.
How can we best communicate with our loved one?
Use simple and clear language, maintain eye contact, and be patient. Avoid arguing and try to validate their feelings, even if their perception may differ from reality.
What challenges can we expect during daily caregiving?
You may encounter issues like repetitive questioning, mood swings, wandering, and resistance to assistance. Establishing routines can help manage these challenges.
How do we handle behavioral changes, such as confusion or aggression?
Identify triggers for these behaviors and modify the environment accordingly. Staying calm and using distraction techniques can be helpful.
What resources are available for caregivers?
Local and national organizations provide resources, including support groups, training programs, and educational materials. Consider services like the Alzheimer’s Association. (AND OF COURSE, JOINING THE SILVER TSUNAMI AGIN INFO COMMUNITY!)
How do we approach legal and financial planning?
Start discussions about power of attorney, healthcare proxies, and living wills. Consult with an attorney or financial planner experienced in elder care.
How do we prepare for potential emergencies or crises?
Create a crisis plan that includes emergency contacts, a list of medications, and strategies for handling challenging behaviors. Keep these documents easily accessible.
What role should family members play in caregiving?
Family roles can vary, but it’s important to communicate openly and divide responsibilities based on availability, ability, and willingness to help.
When is it time to consider long-term care options?
Consider long-term care when the person's safety cannot be ensured at home, caregiver burnout occurs, or daily care needs increase significantly
How do we involve children or grandchildren in understanding and supporting the loved one?
Educate them about dementia in an age-appropriate way. Encourage empathy through shared activities and allow them to participate in caregiving tasks when possible.
What should we know about end-of-life decisions and palliative care?
Discuss preferences regarding end-of-life care while the person can still express wishes. Palliative care focuses on comfort and quality of life, and can be integrated at any stage of dementia.